Designed by a Stroke survivor to support Stroke victims
Fundraising total: £2010
What is PRA?
PRA stands for Volunteer Patient Research Ambassador. A Patient Research Ambassador is someone who promotes health research from a patient point of view. They could be a patient, service user, carer or lay person who is enthusiastic about health research and is willing to communicate that to other patients, the public, as well as other healthcare professionals.
Over 1000 patients take part in clinical trails in Maidstone and Tunbridge Wells NHS trust each year. Patients who have an interest in research can work with counsultants in designing research projects which are then carried out within the trust. More than 630,000 NHS patients in England took part in clinical research studies last year
Why should I get involved with research?
To have the oppertunity to shape future research, both locally and nationally. To have the oppertunity to gain access to the latest drugs and treatments whilst on trail. To help widen cloinical knowledge of diseases and treatments. To get a better understanding of your condition and possible treatments.
Being involved in research is not just about testing new medicines there are lots of different types of research you can come involved in. Remember participating in research is totally voluntary. Your care and treatment will not be affected if you choose no to take part.
What type of research are there?
Drug trials - to access how new drugs can improve your quality of life.
Questionnaires - to seek your views and experiences of treatments.
New surgical procedures - to help health professionals gain knowledge of the best surgical techniques.
Who will ask me to participate in a rersearch trial?
You may be asked to partticipate in a study by a number of people, such as your GP, a clinical nurse, a hospital consultant, a therapist or a trail research nurse. You may be asked before you come into hospital or whilst you are an inpatient or an outpatient. You may be contacted after you have been discharged. Ask your GP or your clinical team about what research may be relevent to you.
If you are interested the please check the Clinical Trials Gateway
Patient Research Ambassador
Here is a few pictures from National Trials day
at my local hospital: May 20th each year
Here is a couple of pictures of me on a Stroke trial: